Welcome to NeuroLifeNow
Your unique experience is valuable and the insight you provide will dramatically improve the future of healthcare.
Join our journey. It starts today, with you.
A warm welcome from NLN ambassador, Mark
It’s hard enough at the best of times, but with COVID-19 and lockdown, it’s been really difficult to access the services and support needed to help me manage and cope.
But the NHS are looking at how to make things better, and with a bit of help, the services we need can be improved. That’s why I’m pleased to support NeuroLifeNow, which will help me, and others with a neurological condition, to share our experiences of care provision at this difficult time. By contributing our stories, we will make our voices heard.”Lauren Downie Neuro Life Now Champion
By taking part in this pilot, You’re helping
to build the largest neurological community.
Share your story via the NeuroLifeNow app or web platform.
Your story could help millions
Sign up and answer a few questions each month about your access to health and care services, your wellbeing and your experiences of COVID-19.
When you share your experiences with us, you’re not only giving us vital information that will help us change the future of neurological care, you’re also helping to build a community – a community that will provide millions of people like you with a support network.
Talk and we’ll listen
Each month we’ll report back what you, and others like you, are telling us. You will be able to access this. We will also report to those who are responsible for funding and delivering care.
This is just the start. We will be learning throughout, and your experiences will directly influence the evolution of the platform.
We will publish results on the ‘NLN Hub’ section of the website. In the meantime, head over the hub to find links to useful information and support.
Together we have the numbers. We have the power of our collective stories. And we will not rest until our voices create the change we want to see. These are our goals:
- 1 million active voices within our community in the next 5 years
- Halve the average wait times to be seen by a neurological specialist
- Every local service funder and provider will have heard from people with neurological conditions by 2025
We will look carefully at what you are telling us, and help to make sure your experiences have the platform they deserve. We’ll help to amplify them with healthcare professionals, people who fund services, politicians and more. Your stories will drive campaigning for better support for all people with neurological conditions.
This is the beginning of something great. Join us now.
Download the app or visit the web platform today.